COMPLETE RESOURCE GUIDE FOR PEDIATRIC DISORDERS, 2019-20 + 1-YEAR ACCESS CARD

Introduction xi
Glossary xiii
Glossary of Acronyms xvii
Guidelines for Additional Information and Resources xix
Disorders by Biologic System Affected . xxv
Section I: Pediatric Disorders
Achondroplasia 1
Acute Gastrointestinal Infections 4
Acute Lymphoblastic Leukemia.9
Acute Myeloid Leukemia . 16
Albinism 22
Alopecia Areata 26
Alpha-1-Antitrypsin Deficiency 28
Anencephaly . 30
Aniridia . 32
Ankylosing Spondylitis 34
Anorectal Malformations . 36
Aortic Stenosis . 39
Apnea of Prematurity 41
Arnold-Chiari Malformation 43
Arrhythmias . 45
Arthrogryposis Multiplex Congenita 48
Asperger Syndrome . 50
Asthma . 57
Ataxia 67
Atrial Septal Defects . 76
Attention Deficit Hyperactivity Disorder . 78
Autistic Disorder . 89
Bell’s Palsy . 117
Biliary Atresia 119
Bipolar Disorder . 121
Brain Tumors . 126
Bronchopulmonary Dysplasia 145
Burn Injuries 147
Celiac Disease 150
Cerebral Palsy . 154
Charcot-Marie-Tooth Disease 170
Childhood Dermatomyositis 173
Childhood Schizophrenia 178
Chorea 185
Cleft Lip and Cleft Palate 187
Clubfoot . 191
Coarctation of the Aorta . 193
Colic 195
Conduct Disorder 197
Congenital Adrenal Hyperplasia 202
Congenital Cataracts 204
Congenital Diaphragmatic Hernia . 216
Congenital Dysplasia of the Hip . 218
Congenital Glaucoma . 220
Conjunctivitis . 232
Cornelia de Lange Syndrome . 234
Craniosynostosis . 236
Crohn’s Disease . 239
Cryptorchidism 249
Cushing’s Syndrome . 251
Cystic Fibrosis 253
Cytomegalovirus 264
Dental Conditions 266
Depression . 272
Diabetes Mellitus 282
DiGeorge Syndrome 289
Down Syndrome . 292
Dyslexia . 307
Dystonia . 311
Eating Disorders . 315
Ectodermal Dysplasias 331
Eczema 334
Ehlers-Danlos Syndrome 338
Encephalocele . 340
Encopresis . 343
Epidermolysis Bullosa 345
Erb’s Palsy . 347
Erythema Infectiosum 349
Esophageal Atresia . 351
Ewing’s Sarcoma 353
Familial Dysautonomia . 356
Fetal Alcohol Syndrome . 358
Fetal Retinoid Syndrome 361
Fragile X Syndrome 363
Galactosemia . 366
Gaucher’s Disease . 368
Growth Hormone Deficiency . 370
Guillain-Barre Syndrome 376
HIV Infection . 378
Head Injuries . 386
Hearing Impairment/Deafness 400
Hemangiomas and Lymphangiomas . 448
Hemolytic Disease of the Newborn 451
Hemophilia . 453
Hepatitis . 470
Hereditary Fructose Intolerance . 474
Herpes Simplex . 476
Hirschsprung Disease . 478
Histiocytosis 481
Hodgkin’s Disease . 483
Homocystinuria . 486
Hydrocephalus 489
Hypertrophic Cardiomyopathy 496
Hypoplastic Left Heart Syndrome . 498
Hypothyroidism . 502
Ichthyosis 505
Intraventricular Hemorrhage . 508
Juvenile Rheumatoid Arthritis 509
Kawasaki Disease 513
Keloids 515
Kernicterus . 517
Klinefelter Syndrome . 519
Klippel-Feil Syndrome 521
Lazy Eye . 523
Lead Poisoning 527
Learning Disability/Reading Dyslexia 529
Legg-Calve-Perthes Disease 535
Leukodystrophies 537
Lissencephaly . 539
Lyme Disease . 542
Macrocephaly . 545
Maple Syrup Urine Disease 547
Marfan Syndrome 549
McCune-Albright Syndrome . 551
Meningitis 553
Mental Retardation . 555
Microcephaly . 561
Microdontia 563
Migraine Headaches 564
Milk Protein Allergy/Lactose Intolerance . 569
Mucolipidoses 571
Mucopolysaccharidoses . 573
Muscular Dystrophies . 575
Narcolepsy . 582
Neonatal Herpes Simplex 589
Neonatal Jaundice 591
Nephrotic Syndrome 594
Neurofibromatosis . 596
Neuroblastoma 602
Neutropenia 605
Nightmares . 607
Night Terrors . 610
Nocturnal Enuresis . 613
Non-Hodgkin’s Lymphoma 615
Noonan Syndrome . 619
Nystagmus . 621
Obesity 631
Obsessive-Compulsive Disorder 637
Omphalocele 643
Oppositional Defiant Disorder 645
Osteogenesis Imperfecta . 647
Otitis Media 652
Passive-Aggressive Behavior . 655
Patent Ductus Arteriosus 658
Pemphigus . 660
Phenylketonuria (PKU) . 663
Phobias 665
Photosensitivity . 671
Physical & Sexual Abuse 674
PICA 681
Pinworm (Enterobius Vermicularis) 683
Pityriasis Rosea . 684
Pneumonia . 686
Polydactyly . 688
Porphyria 690
Post-Traumatic Stress Disorder . 692
Prader-Willi Syndrome 696
Precocious Puberty . 704
Prematurity . 706
Preventable Childhood Infections . 709
Protein C Deficiency . 718
Psoriasis . 720
Ptosis . 725
Pulmonary Hypertension 727
Pulmonary Valve Stenosis . 729
Pyloric Stenosis . 731
Refraction Disturbances . 734
Respiratory Distress Syndrome of the Newborn 745
Respiratory Syncytial Virus Infection 747
Retinitis Pigmentosa 749
Retinoblastoma 751
Retinopathy of Prematurity 755
Rhinitis 757
Sarcoidosis . 761
Scleroderma 767
Scoliosis . 772
Seizures . 778
Sickle Cell Disease . 790
Sleep Apnea 795
Sleepwalking . 798
Social Anxiety Disorder . 801
Speech Impairment . 805
Spina Bifida 811
Spinal Muscular Atrophies . 821
Strabismus . 824
Stuttering 826
Subacute Sclerosing Panencephalitis (SSPE) . 829
Sudden Infant Death Syndrome . 831
Syncope . 842
Syndactyly . 844
Systemic Lupus Erythematosus . 846
Tay-Sachs Disease . 850
Telangiectasia . 854
Tetralogy of Fallot . 858
Thalassemias 861
Thrombocytopenias 867
Thumbsucking 869
Tics . 871
Tourette Syndrome . 875
Toxoplasmosis 887
Transposition of the Great Arteries 889
Trisomy 18 Syndrome 891
Trisomy 13 Syndrome 893
Tuberculosis 895
Tuberous Sclerosis . 898
Turner Syndrome 901
Ulcerative Colitis 907
Urticaria . 911
Ventricular Septal Defects . 913
Violence by Children & Teenagers 914
Williams Syndrome 924
Wilms Tumor . 926
Wilson Disease 929
Section II: General Resources
Government Agencies 932
National Associations and Support Groups 935
State Agencies & Support Groups . 955
Libraries & Resource Centers 987
Research Centers 997
Conferences 998
Audio/Video . 1000
Web Sites . 1001
Book Publishers 1006
Magazines. 1006
Journals. 1006
Newsletters 1006
Pamphlets . 1008
Camps 1009
Grant a Wish Foundations 1019
Section III: The Human Body
Cardiovascular System. 1021
Cells . 1023
Dermatologic System 1027
Digestive System . 1029
Endocrine System. 1032
Growth and Development. 1035
Hematologic System. 1038
Immune System 1040
Musculoskeletal System 1042
Nervous System 1043
Reproductive System 1047
Respiratory System 1049
Sensory Organs. 1051
Urologic System 1053
Section IV: Indexes
Entry Index 1055
Geographic Index . 1097
Disorder & Related Term Index 1115

The Complete Resource Guide for Pediatric Disorders, 2019/20 provides current, understandable medical information, resources and support services for over 200 pediatric disorders. A repeat winner of the National Health Information Awards “Honoring the Nation’s Best Consumer Health Information Programs and Materials” award, this reference work provides vital information for afflicted children and their support network, including family, friends, and medical professionals. This reference work includes 8,000 listings, and each listing has updated contact data – address, phone, fax, web site, e-mail – and helpful descriptions. Users will find 6,000 fax numbers, 6,000 e-mail addresses, 7,000 web sites and 14,000 key executives – many more data points than the last edition.

The disorders and issues covered in this guide have been determined to be most prevalent in the pediatric population, ages 0-18. They include both physical and mental conditions, and range from cancer to nightmares.

The front matter for The Complete Resource Guide for Pediatric Disorders includes:
Two glossaries. The first is a guide to medical terminology that provides important navigational tips and more than 200 commonly used medical prefixes, roots and suffixes to help readers decipher terms they may encounter in the disorder descriptions or in other resources they are using. The second glossary includes medical acronyms, especially as they relate to vaccines.

Guidelines for Obtaining Additional Information and Research. These guidelines assist parents and caregivers who are interested in obtaining more information on such diverse topics as physicians who specialize in certain pediatric disorders, accredited hospitals, approved drugs or medical devices for certain pediatric conditions, or current clinical trials that are investigating possible new therapies for particular diseases.

This resource is a one-stop resource, enabling professionals and the families they serve to obtain immediate, important information from one comprehensive source. It is organized into six detailed sections:
Section I: Disorders:
This section includes over 300 major disorder chapters that comprise more than 266 specific disorders, diseases, or conditions. They are arranged in alphabetical order, from Achondroplasia to Wilson Disease. Each chapter begins with an extensive description, written in understandable language. The descriptions in this eighth edition have been reviewed by medical professionals to include the most up-to-date methods of diagnoses and treatment. Each description includes: Disorder name and synonyms; Primary symptoms; Physical findings; Related Disorders; Cause: Body system affected; Standard treatment.
Section II: General Resources:
This section includes 1,000 resources, including Government Agencies, National Associations, State Agencies, Support Groups, Newsletters, Books, Magazines, Camps and Wish Foundations. These may not be limited to a specific disorder, but offer information and support for categories of disorders. Users will find resources on not only physical pediatric disorders, but also on mental and emotional conditions that affect our younger population. There are also resources that deal with multi-disorder conditions.
Section III: The Human Body:
This educational element is comprised of 15 detailed descriptions of body systems or medical categories. This section is designed to provide a comprehensive overview of the human body, enabling the user to broaden his or her understanding of how a particular disorder affects a specific body system(s) and further, how it may relate to the body as a whole. It includes twelve specific body systems, from Cardiovascular to Urologic, plus two additional chapters: Human Cells and Child Growth & Development.
The back matter of The Complete Resource Guide for Pediatric Disorders includes:
• Entry Index
• Geographic Index
• Disorder & Related Term Index
• Glossary of Medical Prefixes, Suffixes and Roots
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The Complete Resource Guide for Pediatric Disorders is available for subscription online at https://gold.greyhouse.com, for even faster, easier access to this vast array of information. With a subscription, users can search by disorder, keyword, geographic area, bodily system, and much more. Visit the site or call (800) 562-2139 to set up a free trial of the Online Database.